Today I was reading an article that a very special person took the time out of her life for. She took the time to let strangers see what it is like for her everyday living with Narcolepsy. It was not something she had to do but something she wanted to do in an effort to increase awareness. Being PWN's, (persons with Narcolepsy ) we already know there is a stigma attached to the disease. Yes, it is officially classified as an auto-immunological disease as well as a neurological disorder. I digress. Anyhow, after getting my official diagnosis, I began hearing all the want to be doctors give their assessments and opinions of what I needed to do and I just brushed it off. Reading some of the comments that I read this evening though were just on a whole other level, especially coming from complete strangers, so I am going to clarify some things. Where should I begin? I think I will start with weight gain. Most PWN do not gain weight because they are too lazy t...
https://www.instagram.com/reel/CyZhTsVryjN/?igshid=NjIwNzIyMDk2Mg== I understand that the Will and Jada situation is tiring. I know most of us don't want to hear anymore about it. If you take the celebrity status out of the equation and view it from a more humanistic point, it really becomes less of a punchline. People see an actress trying to sell her book. I see a woman who possibly just wants to be understood. Everyone has made her out to be this bad person without really knowing the full dynamics of their relationship. I think a good portion of it might even be a result of trauma bonding. I know we are tired, but I think Bluecentric gives really good insight and makes some very valid points. I would hope most people bashing Jada would really listen and at least gain maybe just a bit more empathy. I might just be a little too idealistic though.
This morning I saw a lady with a scooter and a lot and oh bags sleeping at the bus stop. It made me really emotional and I started reflecting. The end of the year is definitely not favorite time of year, even with my birthday, Thanksgiving and Christmas. In September 2013, I was finally diagnosed with Narcolepsy after years of trying to find answers and fighting to keep a job. It was also the time I was told by my doctor that with the severity of my symptoms, I would probably never be able to hold a job full-time. Up until that time I still has hope that once I knew what was wrong with me, it could be fixed. By the next year, November 2014, I had been combination of meds and my depression had reached its darkest levels. I couldn't keep a job. I felt like a failure as a parent. I just didn't want to be here anymore. After a few days of being intubated in ICU after an overdose, I voluntarily committed myself where I spent a week in the psych ward. Honestly, the experience was r...
Comments
Post a Comment