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Showing posts from May, 2020

May 25, 2020 Just a post

My child has slept all day. This isn't the first, second or even the umpteenth time. I hope and pray with everything in me she doesn't have Narcolepsy. I hope and pray with everything in me she doesn't have to go through even a fraction of what I have had to. All I know is, I am going to be there for her if it turns out she does. I will do everything in my power to make sure she knows she isn't less than. I will do everything in my power to make sure that the stigmas, the fallacies, the stereotyping the judgements that people make are flaws on them and not on her. I would never wish this illness on anyone, not even my worst enemy, and I truly hope this is just paranoia on my part. If it isn't though, I am going to make sure I am there for because I know what it was like having noone there for me and having noone who even seemed to want to try to understand how much this illness takes away and knowing that it is something I will have to deal with for as long as I wal

VOTE

Joe Biden may not be your first, second, or even third choice. He is flawed. He has pushed through flawed, and I will say harmful policies.  He is, however, not a mentally unstable, mentally underdeveloped, narcissistic, egomaniacal wannabe dictator who will try to single handedly try to dismantle the judicial system, destroy every avenue of free speech that we have, unabashedly incite dangerous, murderous, behavior, disregard hundreds of thousands of human lives for economic gain, and pretty much bring about damage to this country that will probably take decades to recover from. So if we end up with Trump for another four years because POC choose not to vote, or choose to hold their votes hostages, then you will have gotten the president that you deserve and have no right to complain.

May 25, 2020 Just a post

My child has slept all day. This isn't the first, second or even the umpteenth time. I hope and pray with everything in me she doesn't have Narcolepsy. I hope and pray with everything in me she doesn't have to go through even a fraction of what I have had to. All I know is, I am going to be there for her if it turns out she does. I will do everything in my power to make sure she knows she isn't less than. I will do everything in my power to make sure that the stigmas, the fallacies, the stereotyping the judgements that people make are flaws on them and not on her. I would never wish this illness on anyone, not even my worst enemy, and I truly hope this is just paranoia on my part. If it isn't though, I am going to make sure I am there for because I know what it was like having noone there for me and having noone who even seemed to want to try to understand how much this illness takes away and knowing that it is something I will have to deal with for as long as I wal

What Does Cataplexy Feel Like For Me

Cataplexy, it is quite the unique condition. It manifest itself in different ways for different people. For some it lasts seconds, with almost complete paralysis. For some it can go for upward of an hour. The latter dedcribes mine. For most attacks are triggered by emotions. For others, they can just come out of the blue. Again, the latter would be me. Most would call my attacks atypical. Either way, no matter how they manifest for different individuals, it is quite debilitating. While I can't speak for other people with Narcolepsy, I can attempt to give some insight on what it is like for me. When a Cataplexy Attack occurs, you are essentially losing muscle control. You have no say so whatsoever over your bodies actions. I mentioned earlier, for some it is complete paralysis. Mine have been called mild because I do have some control. I know when they are coming and I can lay or sit down to keep from falling. Now while some say mild, there is nothing mild about how horrible my body