Baby Girl continuously breaks my heart. This morning she said she doesn't like school, because sometimes all she wants to do is sleep. People think I am paranoid, but I am the one who has lived with this. I know what it is to have my complaints dismissed. Yesterday, I saw my youngest daughter also struggling. She is already being scheduled. People say, "Well you work and deal with it. She will learn." The thing is, I shouldn't have to. Noone should have to. I do it, but I swear on everything in me, I would never, ever wish my daily struggles on anyone. Just because you don't see it, doesn't mean it is a daily battle. I am not seeking pity, because I am strong and I am proud of that strength. I wouldn't be the person I am if it weren't for my battles. Make no mistake though, if it is in my power to make sure future generations don't have to do this, I will. All I ask is that people be more cognizant of what they say. Some of the things that may be meant to be helpful just come off as dismissive. Just try to be a little more aware, that is all most of us really want, understanding and awareness.
Narcolepsy: Idiocy vs Actuality
Today I was reading an article that a very special person took the time out of her life for. She took the time to let strangers see what it is like for her everyday living with Narcolepsy. It was not something she had to do but something she wanted to do in an effort to increase awareness. Being PWN's, (persons with Narcolepsy ) we already know there is a stigma attached to the disease. Yes, it is officially classified as an auto-immunological disease as well as a neurological disorder. I digress. Anyhow, after getting my official diagnosis, I began hearing all the want to be doctors give their assessments and opinions of what I needed to do and I just brushed it off. Reading some of the comments that I read this evening though were just on a whole other level, especially coming from complete strangers, so I am going to clarify some things. Where should I begin? I think I will start with weight gain. Most PWN do not gain weight because they are too lazy to exercise. Also, i
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