My Cause: Narcolepsy, More Than A Sleep Disorder

Some of you are probably sick of hearing me speak on this, and I would apologize accept for the fact that I am not sorry. We all have causes that are important to us. This is mine, and I am not going to let my only show of support be a black ribbon for Narcolepsy or a pic of me stating Narcolepsy Not Alone.
I put a lot out here and it isn't for sympathy. I don't need anyone feeling sorry for me because God has got me. There are people like me, who need help. Narcolepsy is so much more than a sleep disorder. It affects cognitive skills, muscoskeletal functioning, metabolism, as well as other neurological functioning. I have lost family, friends, jobs,  homes and any ability to live a normal life. I never thought I would end up in a homeless shelter, but I did and it was other Narcoleptics who helped me, people who are also in fear of losing everything they have. The numbers just keep increasing. No one questions Parkinson's, or Dimentia. You say Narcolepsy, and it's, " Oh, I have that sometimes." No, you don't. It is not just being uncontrollably sleepy.It is so much more and it robs you of self. People say, well it won't kill you. When you have Narcolepsy, you aren't living. You are existing. Imagine no being able to work, drive a car, go out to movies, or not being able to laugh at a simple joke. Imagine if you could barely find the energy to leave your home, if you even still have a home. What if you couldn't take a simple shower without having to drop to the floor right after? That is Narcolepsy, and I have only covered an infintismal part if the damage this neurological disease does.

https://www.nicer.ngo/donate/

Comments

Post a Comment

Popular posts from this blog

Narcolepsy: Idiocy vs Actuality

Today I was reading an article that a very special person took the time out of her life for. She took the time to let strangers see what it is like for her everyday living with Narcolepsy. It was not something she had to do but something she wanted to do in an effort to increase awareness.  Being PWN's, (persons with Narcolepsy ) we already know there is a stigma attached to the disease.  Yes, it is officially classified as an auto-immunological disease as well as a neurological disorder.  I digress.  Anyhow, after getting my official diagnosis,  I began hearing all the want to be doctors give their assessments and opinions of what I needed to do and I just brushed it off. Reading some of the comments that I read this evening though were just on a whole other level, especially coming from complete strangers, so I am going to clarify some things. Where should I begin? I think I will start with weight gain. Most PWN do not gain weight because they are too lazy t...
Read more

Formation Represents Self Recognition

I can't say I am the biggest Beyonce fan. Sure, I like some of her music, and I respect the fact that she works hard, but that is about the extent of it. I think she is human,  just like the rest of us, with maybe a tad bit too much exposure. Well, recently, Beyonce stunned the world,  yet again, by releasing another surprise single titled Formation. It is a very visually creative piece that possesses quite a few social undertones. Now whether people are stans, simply fans, or not a fan at all,  the video certainly has people talking. And as with pretty much most of today's race related topics, the issue of blacks seperating themselves has become a subject of conversation. Also, there are some who question the timing and the motivation of the video. There are those who think it is just another calculated business move. There are some who praise it for touching on areas that are greatly in need of social change. Regardless of intent, there is a deep message in the vi...
Read more

I Will Not Apologize

People get upset when I say that they can't possibly understand what it is like to live with a chronic illness unless you share that illness. They don't always understand that reading about and researching it isn't the same as living it. People don't understand that Narcolepsy and Cataplexy are a part of me and and they dictate, not me, a lot of my responses. I can see how it might be hard to understand that I am not brushing off or ignoring situations because I don't respond the way I should. I get that it is hard to comprehend that my seemingly lack if emotion is a necessity for me to make it through. It is as automatic to me as breathing and it us NOT going to change. Narcolepsy is an awful illness but coupled with Cataplexy, it can be almost unbearable if you don't make some unnatural adjustments. I can't show you what it feels like. If you don't have it, all I can do is try to give you a glimpse. Imagine if every time someone at work frustrated yo...
Read more