Why I don't support Narcolepsy Awareness Groups
Facebook asked if I wanted to do a fundraiser for a couple of the Narcolepsy Awareness groups. I do not and I will tell you exactly why. You will never find two people with Narcolepsy who struggle the same. There are varying degrees. There are some fairly high functioning PWN. There are PWN who aren't necessarily high functioning but respond fairly well to treatment, vastly improving their quality of life. There are some PWN who struggle to do simple everyday things. My issue with the more prominent awareness groups is that they are run by the higher functioning individuals. Because they are higher functioning they don't seem to be able to relate to those who suffer from the more debilitating symptoms. Anytime there is any type of media or information put out, the emphasis is placed on those PWN who push through or overcome "in spite of." My focus are the PWN who can't push through, the PWN who have been alienated, disparaged, or unfairly judged because of their ...